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Projects

> Helping people affected by Erythropoietic protoporphyria (EPP) to collect data

The challenge: Patients with the genetic rare disease Erythropoietic protoporphyria (EPP) do not have a mechanism to correlate the level of pain and symptoms they suffer when exposed to various light spectrum. While a therapy exists to help them manage the disease, their day to day living is guided more by their own sixth sense than any guidelines.

How we are helping: by creating a mobile app paired with a light sensor, we want to enable the patients to start reporting the level of pain they experience, capturing associated light information, area of pain and activities at time of episode. The app also supports a Quality of Life (QoL) questionnaire. The aim is to create a toolset that captures enough data over the longer run to support further medical research and access discussions.

Current Status: Under development and user testing. More info here  

Project - EPP
> Wearables for T1 Diabetic children

 

The challenge: Parents of children with recent diagnosis of T1D are understandably anxious about their child's glucose levels and on guidance towards actions to take to manage the glucose levels. While great progress has been made around continuous glucose monitoring and remote tracking, these solutions depend on expensive devices (smart phones and watches) that may not be appropriate for young children and their active lifestyles.
 

How we are helping: By developing a child friendly wearable that has a long battery life, is child friendly in use, supports remote transmission, provides actionable guidance, is relatively inexpensive and compatible with existing CGM medical devices. The aim is to support parents and caregivers in getting faster confidence for managing the disease and reduce anxiety. 
 

Current Status: Under Development 

Project - T1 Diabetic children
> App for pediatric incontinence

The challenge: Episodes of incontinence in children are often logged in paper forms. These are not shareable easily with parents / caregivers, difficult to fill and the information difficult to analyze for patterns. This creates a barrier to proper management of medication and care of the child to help them get better faster.  
 

How we are helping: By developing a parent and healthcare professional (HCP) friendly mobile app that allows for easy tracking of episodes of incontinence, sharing of information and trend analysis we aim to make the management of incontinence a lesser burden and supporting faster recovery.  
 

Current Status: Version 1 developed. Enhanced version at concept design

Project - Pediatric incontinence

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